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Inside Out- A Bereaved Mother’s Review

INSIDE-OUT-18Yesterday, we had one of those Sundays when we were too tired to get into the car and drive somewhere so we decided to go and watch the Inside Out movie instead.

I had heard loads about it and read various reviews, especially by bereaved mothers who had found it brilliant and I was curious to watch it and form an opinion myself.

The plot is deceptively simple: a little girl, a life changing move to the big city, the emotional turmoil that follows, all seen from inside out, through the prism of her emotions: Joy, Sadness, Disgust, Fear and Anger.

But the movie is far from being simplistic in the message it tries to convey: emotions make us who we are and that by trying to repress one or another, we end up ruining our whole system of reference and risk to become emotionally dead, like the little girl does, for a short while.

As bereaved parents, we watched the movie through the lens of our loss, of course.

We heard things that made sense to us, in our grief, things that the non-hurting individual watching the movie might as well have passed as good punch lines or just wee jokes. To us, those things have been reality for the past year and a half.

We saw in the desperate attempt to push away Sadness from any position of power or authority in the internal system, for fear of “contamination”, the very same lame attempts to “prettify” life people approached us with when Georgie died.

Sadness is not a welcomed emotion in our society, the movie seemed to say, and its place has been declared to be a circle, a chalk sign on the pavement, from which Sadness cannot reach, nor contaminate us.

Only, the thing is, Sadness did seem to have a pretty big role in Life, as reality would have it. Joy, as much as we would love to have it in our lives as a constant, is simply not the only emotion we will ever experience in life. Life is much more complex than that…

For a while, Joy and Sadness get lost in the mayhem, when the major events of moving home and state take place and the following loss of identity occurs.

For a while, other emotions are left in control, like Fear and Anger and Disgust.

Oh, I recognise them all so, so well…

I have lived them all, at the highest intensity, since I lost my boy.

You have all been my witnesses and judges: I have been angry, I have been fearful of the future, I have been disgusted with people’s reactions and the way society denied me the right to feel all these negative emotions and speak about them openly and honestly.

I know too well that even now, after so many months of pouring my guts out and trying to educate people on what grief really feels like, I am still being judged as:

  • the nevrotic
  • the church wrecker
  • the messer
  • the bold one, and not in the good sense of the word
  • the unsympathetic
  • the big mouth
  • the lunatic.

My husband still gets told, even to this date, that I should be kept in check, that I have no consideration for the “holy”, that he would be better off without me…

It takes a kids’ movie to convey a BIG truth: that emotions need to be felt, that people who are hurting need to be allowed to feel those devastating emotions, that Joy and Sadness take the back seat when an emotional tsunami hits and that the only way, the ONLY way for the sanity to return, for that healthy balance of Joy and Sadness to be reinstated is to face those emotions and let them, for a while, for as long as it takes, reign.

It is not pleasant to see, it is not “holy” as people have declared holy to be but guess what? It is the only way to return to normality in the long run and it is, dare I say, the healthy way to face devastation. Reaction, no matter how dramatic it is, no matter how angry or fearful or annoying aesthetically or socially, is the only way to show that life is still streaming through the system.

I have been told I am stubborn in my grief. That I am unforgiving. That I like to wear it as a shield.

I have chosen none of the above myself.

I have followed the river of sorrow, I have ridden it as it came, angry and flooding my values and senses and my core being. I have done grieving in the only way it can be done.

Now, after all what used to be has been burned to the ground, now that there is nothing left of my former life, now that my emotions are spent, now I can start rebuilding.

The movie gave me hope, as in the end, all emotions had learned to coexist harmoniously and in the background, new memories had taken shape and the internal world was orderly again. A new order. A new world.

I know that I am on the brink of a new life myself.

I have felt the change come over me and although anger, disgust and fear still play and will continue to play a big part in my daily dealings with life, I do feel that in the background, Joy and Sadness have made a pact, to co-exist and draw strength from each other.

Have you watched the movie? What were the deep messages you got from it yourself?

What this mummy loved in…September

I have entered a season of change and I have felt the almost overwhelming need to look after myself in the last month. In my last personal post I was talking about taking time off to figure out how things will go from here. Things haven’t been as straight forward as I would have needed them to be, as, in spite of being signed off work for a couple of weeks, peace has eluded me. Hubby suffers from what we now know to be SAD (Seasonal Affective Disorder) and instead of being able to rest, I have been worrying constantly last week about him (as his sadness seems to be much worse this year) and the future.

So, my only way to find peace has been to draw on things that have brought me joy in drops this season. Here is a list of things that this stressed out mummy has found comfort in this past month:

  1. Self-care, in the form of Bach flower remedies as drops into my drinking water, a little pampering session (which included a hair wash and blow dry) and time off from my mummy and house duties, which I used for a reflexology session with Action Cancer in Belfast.

009For people who have been through emotional trauma, like we did last year, taking time off for themselves is essential but not always easy, as keeping busy is a very convenient (but long-term, very detrimental to our health) “solution” to grief and emotional pain.

I was introduced to Bach flower remedies and reflexology on the oncology ward, when Georgie was going through his treatment and I have found them both extremely helpful. My body is still extremely tense at times and my mind is usually in overrun, so adding diluted natural remedies into my drinking water daily and taking time once a week to have my feet massaged are simple ways of ensuring that the tension is being managed in gentle yet efficient ways.

2. Healthy diet and exercise

Being a cancer parent sucks as you are forced to live on poor hospital food for months. We were lucky in this way, as we had a dear friend organise weekly food deliveries to our house but still, I do not recall any other time in my life when my body craved chocolate and crap food so much as it did when we were in the hospital with Georgie.

After he passed away, I was put on antidepressants that made me feel totally numb emotionally and increased my appetite. I never seemed to feel satiated and the weight kept piling on and left me feeling even more miserable and more prone to gorge on calorific rubbish.

This summer, I finally managed to wean myself off antidepressants and the desire to look after myself has returned.

In September, I gave myself a challenge and went the whole month without sugar. I saw dramatic changes to my appetite (which has decreased significantly since I do not sugar spike anymore) and my desire to look after myself, exercise and slim down has grown stronger and has been giving me motivation to get out of bed every day.

I started cooking healthier recipes, using Sarah Wilson’s books, cutting down sugar to a minimum and replacing it with healthy fats and protein:

034So, when Blend Bros offered us the opportunity to review their new protein powder sauces, I was certainly very keen to try them out, as the main ingredient is pea protein, highly recommended by Sarah.

025 (2)We did use the powder several times since we received the products, when making simple family meals like spaghetti bolognese or spicy paella rice. Our favourite has been so far the Mexican Pibil Stew as it adds a kick of flavour to any dish. The powders are easy to use, varied in taste(the available versions include British favourites like curry, Thai and Mexican) and a very simple way to add protein to a meal like pasta, for example. They can be used as a warm savoury drink as well, like the Swiss bouillon, and they are by far now my favourite go to protein aid, as I cannot stand the sweet, artificial, highly processed stuff they sell in health stores. With 40 grams of plant protein and 12 grams of sugar(much less than any ready made sauces out there!) per 100 grams, I do hope the sauces will make waves in the health food industry and become a kitchen staple for many households.

3. New care regime

I was introduced this September to beauty boxes and I loved the concept of getting a number of high quality products or sample versions to discover, try and fall in love with!

I tried several, out of greed curiosity and found the Birch Box the most value for money, at £12.95. I have used each and every single product from the September box and found them all wonderful, from the Foot Patrol relaxing cream to Paula’s Choice Skin Perfection liquid.

I got this month’s box in the post on Saturday and I cannot wait to use my Fat Liquid Eyeliner and Beaver Professional Shampoo, which smells absolutely divine!

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SUBS---October-Mobile_midnight

I also sampled organic female hygiene products, like Organyc, thanks to a review opportunity and enjoyed the feel of luxury and the clear conscience that the cotton used to make them is not in any way harmful to my body! I was very surprised to realise they are actually very affordable and I will definitely try them again, not only for my peace of mind but for comfort also.

0734. Reading and colouring in for relaxation

Before I had Emma and since I was a teenager, reading has been my main way to chillax.

I have started to read again but not at the rate I used to, as I still find it very hard to concentrate and find my mind distracted quite often. This month’s book has been Dear Zari, hidden, heartbreaking stories from women of Afghanistan. I found it fascinating in the light of the refugee crisis in Syria and seeing the striking similarities in political detail which led to the destruction of a beautiful country and culture and the oppression of millions of women.

51oo8uNsNiL._SY344_BO1,204,203,200_I have tried, rather unsuccessfully so far, to make colouring in into a relaxing hobby. As with everything, I find that discipline is required before habit kicks in and I am still not into the habit of giving myself an hour or more to do something that has the potential to calm my mind. I have printed cute and simple autumn and halloween ones which I will try and do with Emma, as she is better than me at staying on task when it comes to colouring in :-).

61fzdLosncL._SY498_BO1,204,203,200_What do you do on a regular basis to look after yourself ? Have you tried any of the above products and techniques?

Back to School Heroes

The schools have been back for almost a month and most our children have already been through their first set of school-related sickness or even worse, visit to the doctor or the pharmacist!

I have been sent all month of September things to try out with Emma, that would prevent some of the normal ailments and plagues children get once they return to school and into a germ-exchanging community, so to say :-).

Very high on my list is Picksan, NO LICE, a new lice preventative stray. I work in a school environment too so picking lice is a genuine concern at times.

PICKSAN-Lice-Stop

 Fortunately , we were sent Picksan which is supposed to be a “natural and effective approach for preventing and treating head lice for your family.”

 NO LICE! Preventative Spray and LICE STOP Shampoo Treatment are natural and scientifically proven applications for preventing and treating head lice for the whole family, from children age 3 to adults.

In their press release, Picksan says “It’s well known that head lice are becoming increasingly resistant to synthetic and chemical products of late. However, research carried out by Professor Dr Mehlhorn from the Dusseldorf University, shows lice are less resistant to natural products like herbs and oils.

NO LICE! Preventative Spray and LICE STOP Shampoo Treatment have been used to treat head lice in Europe for over ten years.  Both products contain a unique blend of natural ingredients including the patented MelAza extract from the seed of the Neem tree.  Neem has been used in India for thousands of years as a treatment for head lice.

Whilst many parents are happy to use well-known brands of lice treatments containing powerful chemical ingredients to treat their children’s head lice, most aren’t comfortable using these harsh products as an ongoing, preventative treatment.

NO LICE! And LICE STOP are both priced at £8.95 for 100ml and are available from Holland & Barrett, Victoria Health and other independent health stores.

 NO LICE! and LICE STOP are both:

  •  SCIENTIFICALLY PROVEN TO BE EFFECTIVE
  • CONTAIN NATURAL INGREDIENTS
  • DERMATOLOGICALLY TESTED
  • PARABEN FREE
  • SLES FREE
  • DEET FREE
  • INSECTICIDE FREE
  • SILICONE FREE
  • KIND TO THE HAIR AND SCALP
  • PLEASANT FRAGRANCE
  • INCREASES SUPPLENESS OF HAIR FOR EASING COMBING
  • SUITABLE FOR CHILDREN OVER THREE YEARS OLD

Personal verdict: I love the fact that these are natural products, that I do not have to worry about spraying Emma(and myself) with chemicals and that it pretty much works like a hair conditioner, no hassle! They also smell lovely and they do not leave one’s hair oily looking so it could easily be used in the morning, as part of the normal beauty routine, really!

Five starAnother product I know Alex will appreciate loads when we are in Greece and now Emma, when she goes swimming in public places, is Swim Seal, drops that are meant to prevent water causing painful ears. Alex suffers terribly, even when swimming in the sea, with painful ears and has been trying all sorts to prevent it every summer and I am sure he would love this solution, as it is supposed to be a “naturally protective barrier containing Australian tea tree oil.”

What-is-Swimseal-NEW-300x300

According to their website, SwimSeal is “the natural answer to preventing water-related ear problems” and works equally well for children and adults in a wide array of situations:

  • For recreational swimmers
  • For competitive athletes
  • For concerned parents
  • For bath-time fun
  • For water therapy

SwimSeal ear drops are applied before going into the water and act similarly to natural ear wax creating a waterproof coating in the external ear canal. Common issues, like swimmer’s ear, can be prevented by applying the drops on a regular basis when in the water. After about two to three hours the SwimSeal coating will wear off and migrate naturally from the ear without build up.

The product sell online and in all major stockists, like Boots and Superdrug for £7.99.

Personal verdict: I am happy Alex has no excuse now for not taking Emma swimming at the weekends :-)! On a more serious note, I am genuinely pleased that we can prevent his sore ears and create some beautiful family memories without the fear of sore ears and since the drops are all natural, I will not worry about him not taking them well!

If Alex suffers from bad ears, I personally suffer from cold sores in winter or when my immune system is depleted of energy so the next product we received and were asked to review is Zzip clear lips, the cold sore soother.

zzip-product

While no product can cure a cold sore, this ground breaking Swiss innovation can provide sufferers with immediate pain relief, activate healing with just two quick and easy applications and empower them to feel more confidant and comfortable to face the world.

This new cold sore soother offers additional features in demand by consumers worldwide:

  • Free from parabens
  • Contains no animal products
  • Has not been tested on animals
  • Contains no Alcohol

Personal verdict: I love the little kit it comes with and the fact that it can be applied neatly and without any spillages. I will be keeping this close this winter, for sure! I was a bit shocked by the price, though, as a 3 ml treatment kit sells for £12.95. Worth checking with your pharmacist before you purchase, as it may be on the list of minor ailments products.

I left the most common ailment for the last: the usual colds and infections children(and adults!) get upon return to school and periodically throughout the winter, leading to sometimes visits to the doctors, antibiotics and other unpleasant medical interventions.

I was sent two products that are meant to alleviate the unpleasant symptoms that accompany the colds and flu we all get once the cold season kicks in.

We had worked with Sterimar before and this autumn, they have launched a new nasal spray, which they kindly asked us to try out and give a verdict on.  Sterimar Stop& Protect is supposed to be an improved version of their original patent and includes now eucalyptus and copper, to decongest even quicker, neutralise viruses and bacteria and fight infections.

StopandProtectThe nasal pump sells online or in any pharmacies and health store in the UK at £9.27.

My verdict: again, I LOVE the fact that it is a gentle, no strong chemical product that is suitable for children from 3 years as well as pregnant and breastfeeding mothers. I am impressed with the new ingredients and that fact that it is 100% sea water, rich in mineral salts and that the spray is preventive as well as alleviating symptoms. Just like my cold sore remedy, I will be keeping this one in my bedside table this winter!

The ProVen Probiotics Fit for School is the last product I will be reviewing this evening.

Fit-for-School-Stick-Packs(14)_pa89-hnI was very impressed by the product info immediately, as I recognised it as a possibly revolutionary product in the illness prevention industry. Specially formulated for children from one year old to help maintain immune function and general well being, it is the sort of product I wish I had come across when Emma was a toddler, as she used to get a cold and infection every three weeks!

Some more product blurb for you:

  • 12.5 billion friendly bacteria per stick pack plus vitamins C & D and prebiotics
  • Proven to reduce the duration of coughs and colds by 50%
  • Proven to reduce the incidence of cough and cold symptoms by 30%
  • Proven to reduce absenteeism from school by 30%.

In order for the product to start taking effect, a child needs to take it every morning for six months, as the friendly bacteria works on the gut relatively slowly but with long term benefits, for sure. We were able to see that with Emma when she was 2 and a friend recommended we put her on vitamins and other good stuff and the effects were extraordinary after six months of consistent use of gentle natural aids.

Emma’s verdict: we used the stick version and added it into her morning porridge. She did say it made her morning cereal much sweeter, as the main ingredient is fructooligosaccharides(or fruit sugar, in short) and wasn’t too fussed on the taste. I would recommend adding it to a cup of milk with no other sweeteners, if your child is fussy like mine!

The product sells for £7.75 per container with 14 sticks(two weeks’ worth).

Which products from the above review would you find useful? Have you used any of them before(or similar) and what is your opinion?

Disclaimer: we were sent the above products for reviewing purposes. The opinions expressed are ours, as always.

A Season For Change

SunsetI need to make some changes in my life and I need time to understand what they need to be.

I have been waking up again at night, for the past week. Every SINGLE night!

It is the sort of full wakefulness that gets me up at 3 a.m. and keeps my head busy for hours.

It got me so desperate for head peace that I had to ask work for a redistribution of my working hours, so that I can have two days a week to rest and think and decide what the next stage of my life is supposed to be.

Decision is pending and my sanity does seem to be pending on the decision, to a degree.

It does feel like my grief has reached a new stage. Our wonderful social workers, from the Royal and the Hospice, both had warned me that grief changes and stages like this are completely natural. Ha, the natural of the completely unnatural process of grieving for your lost child…

Shortly after I lost Georgie, I felt this immense need to talk.

To talk about him. To talk to other bereaved parents. To talk against the taboo of grief and pain and apathy. To talk to other people about my woes and sorrows.

But in time, I have started to realise that:

  • we are not the only ones who are going through the process of grieving, that there are thousands of parents out there who are going through the same.
  • pain does not go away if I talk about it. In fact, it does make it worse and there are only a few people I can talk to about my deepest sorrows, as many simply do not understand and inviting them into my grief is equal to inviting a passer by to dress up a complex gangrenous wound. It is irresponsible and dangerous and very, very painful.
  • that as much as I would have liked to believe it, Georgie is not unique in the fact that he died of cancer at such an early age. In the last year, I have heard of NUMEROUS cases of babies and very young children who have had to go through the same gruesome diagnosis and treatment process. Some of them were “lucky” and are still here. Some are now “heroes” and”angels” and gone.
  • that people, as crazy as it does seems, would use your grief to their advantage. That there are unscrupulous people out there who in the name of religion or personal comfort or shared experiences would use your pain (and the subsequent desire to make a difference in this world) to take as much as they can out of you, either financially or emotionally.
  • that, as much as I would love to use the painful experience of losing a child to help others who are walking the same very painful and lonesome path, at times, I can barely get my own self motivated to carry on with life, let alone carry others on my back.
  • that God, as I knew of, does not exist anymore for me and I need to reconfigure my whole life philosophy that makes sense of a God who does not intervene to stop the pain of so many suffering babes.
  • that I will never, on my own, change the world.

      Yes, I would love to see the children I work with do well in life and I give 110% every time I am with them but the reality is…some of them won’t.

Yes, I would love to change the perception the church has of grief and make EVERY pastor in the land understand that follow-up after a loss is much more important to the bereaved than the funeral service. But the truth is…I can’t.

Yes, I would love to see the world change for the better. I would love to see all these beautiful Syrian families who have lost everything be treated humanely, allowed to make a new start somewhere and see them all integrated and happy and well. But the truth is…some are still dying as I type this, either at the hands of their own government or drowning at sea, in their desperate attempt to get to safety. And I can’t do one single damn thing about it.

So what are my options, with this new knowledge and wisdom gained at the price of sleepless nights and dead dreams?

I simply don’t know and I need time to find the way forward.

I need time to stop and ponder on this new stage of grief and learn new ways to cope with this new sort of pain.

The pain of realisation that pain and death are all a déjà vu to God and still not hate the guts of Him.

The pain of realisation that not even the death of my child will change people, mentalities or the world for the better as people will always choose their own comfort over the pain of change.

The pain of realisation that no matter how much I give, and I have come so many times close to spending myself completely, emotionally and mentally, for the sake of others, there will still be such a vast need for more, much more.

The pain of realisation that, at present, I am in desperate need to look after myself first, no matter how much I hate to admit it.

September was…Childhood Cancer Awareness Month

But I could not bring myself to write Georgie’s story down until tonight.
I got pregnant with Georgie in late spring 2013. I had been longing for another child, to complete our family unit, for years but hadn’t had the courage until then as I had been plagued with severe antenatal and postnatal depression with my first pregnancy with Emma.
From the very beginning, my body knew something was amiss with the pregnancy. I had very strong pains in my belly, ended up in the A&E but was dismissed home with pain killers and the advice to return if the pain didn’t subside. It did.
I also started waking up at night, shortly after that. If only I had known that this was my “borrowed time”, I would have used it to pour all my love and affection on my unborn baby, much more than I did…
There were also other signs no-one could interpret then but in my heart, I know that they were all related to my baby being sick, even from the womb.
There were unusual blood result readings, when the pregnancy was confirmed two months later, at a private clinic in Thessaloniki, where we were spending our summer.
There was also an unusual fetal heart rate reading, too high but not unusual, the doctor had tried to reassure.
My unborn baby was in pain and I didn’t even know it…
I gave birth to Georgie on the 22nd of January 2014. I lost a lot of blood, it had come in waves with every contraction, as a way of my body trying to tell us something was wrong, very wrong with this baby. The birthing room did look like a battle field, I remember thinking. We had entered a battle, a life and death fight and we were totally unaware as yet.
The first signs appeared when Georgie was only two weeks. He stopped feeding properly at the breast. He has this continuous restlessness, as if…as if his whole body was sore…
And other things that I could not interpret as symptoms, as I would have never dreamt of a baby having blood cancer.
There was the time I cut his nails and pinched a bit of his skin. And he wouldn’t stop bleeding. And crying…For ages.
And then, close to three months, he started this strange sweating at night.
His pillow would have been soaked but his body was ice cold and needed two blankets.
And still, I didn’t know to recognise the signs.
But I knew something was not right. Something was terribly wrong, my gut instinct was saying and I kept taking him to the A&E and family doctors for the restlessness he was presenting and now, his poor appetite.
They didn’t recognise the signs either. Even experienced doctors, with a lifetime of medical practice, wouldn’t fathom a baby sick with something as terrible as cancer…
And then, he started running low-grade fevers and having diarrhea. Blood tests were done, finally and a week after Easter 2014, at only three months my baby was admitted into the hospital, with a very strong suspicion of leukemia. The diagnosis was confirmed after TWO spinal taps, as even the CHU doctors in Belfast couldn’t believe it.
And a very rare and aggressive form of it as well, AML, M7 strand, usually diagnosed in men over 65 and children with Down syndrome.
From the word go, my baby had no chance, I know it now.
The drugs he was given were not designed for his tiny frame but for much older men.
The fact that this form is so rare in children, much rarer than ALL, meant that no research had been done and nothing effective was administered.
My baby died after two and a half months of chemo.
I write this with the knowledge that since then, an alarmingly growing number of babies and small boys have been diagnosed with AML in Northern Ireland.
I truly hope that research will go into this and soon, so that no more children will have to suffer what my son had to suffer in his last two weeks of life and no parents will have to live with the questions, the pain and the haunting memories.
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